First Eye Appointment

28th May 2009

Well Noah had his first outing today bummer it was back to the hospital. We went to see the eye doctor but ended up waiting for ages so went upstairs first for his weight. The little man put on 90grams. So was a great weight gain finally hit 2kg. After we headed back to see the doctor. She looked at his left eye and said the antibiotics hadn’t worked and it was definably PA. She explained due to him being prem he can’t have further testing till he is a normal weight. So when he is older we will have a general and have look in both eyes and see if the right eye is 100% good or has any issues. She explained the possibility was low but she was optimistic. She also went through the dangers with PA such as glaucoma and cataracts and he needed to be checked regularly. She also told us to look out for a swollen eye and if any concerns come straight in too see someone and bypass emergency as is needed attention straight away. She gave us some dilators to try and get the left eye to be sensitive to light perifably so it will not become too lazy. She also explained there is a specialist at another hospital who is researching this condition and we would need to see him for genetic counseling and to get the others kids checked. she then checked us, Aaron came back fine but she thinks I might have a very very mild case and need to find out when we go see him cause then I am in danger of the complications as well just unfortunate Noah got it so bad.

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I feel numb still and in disbelieve as much I was prepared with stuff I had read I had kind of twisted my mind into thinking it would be ok and she would say don’t come back is nothing.

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My other 2 kids are from my previous marriage so telling there father is not going to be fun and my DSD mother is going to freak. But we will cross that bridge later as we have to wait for Noah to have his general check first.

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I didn’t write a list (well I did but I didn’t take it on principal of denial) funnily I remembered everything to ask anyway except about the PHI.

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She answered lots of them by saying "cosmetically we can fix that" so that was her main answer and "yes this is serious". he does have a chance of PA plus which is a muscoskeltal issue associated but since he was in NICU and SCBU for so long and never had any issues she doubts it will be a problem.

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So now we wait!!!