Weight, Eyes, Bloods, U/S

Thursday 18th June - Day 60 According to WCH Noah was term today, according to LMHS he is due the 28th so were sticking to that since the hell they put me thru not believing his conception date.

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We had our eye appointment Deppa recons the opaqueness is less, although I don’t think it makes his sight any better but makes it more appealing to look at. She did another test for glaucoma and came back fine so don’t need to go back for 6 weeks which is nice. She wanted him booked into surgey for the 17th of July but the neonates don’t agree so it is put off till he is 4kg which might be months away.

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After he had his appointment with the NED nurse. Weight was 2300grams which is up 40grams over 3 days. Not good so paed came in and discussed long term NG tube as we are refusing to give the bottle. They didn’t have any in stock so a short term one went in till they get one. That is kind of lucky because tonight it got blocked and I had to change it. They took blood for genetic testing and also discussed him being discharged from NED and going to the paed GI team but that wont happen till his next appointment in neonates. The paed organized for us a cardio appointment for another day which was good cause Aaron and I had been up all night with Noah screaming. He put his on losec as well to try and prevent the reflux and increased his iron as he is anemic. Next he sent us down to the ultrasound for a brain scan. The scan didn’t take long but were not given any results and were told we would be contacted if anything was wrong. Was a horrid feeling as usually with scans for the kids the sonographer has said “well I can’t comment but looks ok to me but the doctor will need to look and make a diagnosis.” So now we wait for thous results as well and the bloods.

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So glad it all over till next time and hopefully results will be here soon. And most of all hope Noah sleeps tonight because we are so exhausted it is killing us.