Afternoon Phone Call for Investigation

Monday afternoon 15th June Paed called me this afternoon after speaking to the community nurse about his low weight gain. He said he had spoken to the optomologist and they had decided to do some investigation into his low weight gain. On Thursday he is to have his eyes tested then go up stairs for a brain ultrasound then see the paed cardiologist for a heart check. Were also going to see the genetic specialist for some blood tests to make sure it is only the one chromosome affected and get a 100% diagnosis of PA. He also changed his feeds to 3x gavages feeds with the extras in the calories to try and boost his weight. He said he would also do a neonatal review on Thursday. Feeling pretty scared and crap now but glad there looking into it finally.