7 Weeks Old

Tuesday 9th June Noah has been home for 3 weeks now and loving being around us all. He is having his eye drops 2x a week and we go back to see the specialist on the 18th although I have noticed no reaction with either eye except in the right to really bright lights. Noah has developed a rash on his body and we have used millions of creams and there not working so we saw the paed today. He said to leave it and keep it dry but is nothing to worry about. Noah's tube came out Sunday night and was left out and put on all suck feeds. He has done well on the breast and even got rid of the nipple shield on the right breast. His feeding has gone from 1 hour to half and hour draining well and settling 10x better. He has lost weight over the last week and was out back on the tube today to try and get him to put on weight. If he has no weight gain in the next few days he will need hospitalization to follow up growth retardation and if it is linked to the PA. I pushed for them to investigate now but they want to rule out weight loss just from being at home and less sleep time. So today he weighed 2.1kg So again we wait. But am feeling really good about the breastfeeding without the shield has really made me happy and meant I slept well for the first time in ages. I also got some paper work from the hosp to make a complaint on one of the nurses who made us buy $40 worth of things from the chemist which the doctor told us today NOT to use. She also told me to give up breastfeeding and go to formula as would be better for him; once again doctor was not impressed. So doctor and I formulated a plan which is not to change when a nurse comes without his approval. Feeling a lot more settled now too.