56 Days. 2260grams

Monday 15th June.- 56 days old

Noah had the nurse come today after not being here all weekend. Noah only put on 20grams = 2260gram, which is a tragic weight gain but it is a weight gain so I wont complaint to much. The nurse AGAIN suggested we take out the tube and I am AGAIN said no and said to read the doctors notes as says not to take it out. Why wont the nurses read the files? Noah is due for an eye exam again on Thursday I will ask some big questions then like why his weight gain is so slow and is it related. Also I will go see the paed so I can have a chat about his over weight gain and delayed development. They have his EDD for the 18th which is that day and he wont be anywhere near a normal baby size. Wednesday were having cando4kids come to do the early intervention development program for his eyes. I am really looking forward to some support and info, is very lonely not knowing what to do or think.

*

Noah has been extremely unsettled lately is driving me nuts and I have no idea why. He had a poo and is not sick but he won’t stop crying. I hope he settles soon is sad to see him like this.

*

Overall not sure on how I am coping. I have my breakdown last week and since then am back to ignoring the fact my whole life has changed and all my life plans are now altered. Am trying to just remain calm at least till I see Belinda (cando4kids)