Hospital Admisson Again

Tuesday 23rd June Sunday Noah was discharged from NED he had a good weight gain of 60grams over 3 days. Sunday night after Noah had some brown sugar and water to make him to poo he went bright blue and stopped breathing. At this time he also went limp and wouldn’t wake. After he started to breath again he stayed floppy and grey. I got ready to do CPR and rang SCBU they said to bring him in. I went to emergency where they admitted him for looking for a reason. He slowly came back too 80 minutes after the episode. He has bloods taken which showed a low grade infection and was given antibiotics. We were sent to the rose ward where they did oxygen sats and heart rate monitoring. His sats continued to fall over night and was seen by the doctor. They said they would do more tests the next day and continued to monitor and give O2 as needed. On Monday the HENS nurse came and out in the long term tube. The dietician came and changed him polyjules instead of the s26 fortifier. We immediately notices the different in Noah he was more calm. They organized for an EEG and ECG and heart ultrasound for the Tuesday. His sats stayed much better during the day. Tuesday we had the EEG and ECG and ultrasounds all results coming back fine so got rid off PA+ and epilepsy. Infant mental health came up and organized an appointment as well for development support. We were discharged late with the agreement we come back tomorrow for Neonate appointment to review all the results. I am honestly sick to death of being in and at the hospital, no one talks to each other and nothing happens fast. Am so happy to be home and away from all of thous horrid people who do horrid things to Noah. Am so over having a disabled baby now is not fair on him or us.