Brain Scan Results

Saturday 20th June Couldn’t bring myself to type yesterday. We got our results from the brain scan I had to ring to find out and they told me there waiting for the doctor to call me. so we waited and eventually the doctor called saying he has put our case to our consultant and he is on his way to radiology to find out more and when he does he will call. So knowing something is not right we waited again. The consultant called and let us know that the brain structure was fine so not related to PA+ but Noah has a cyst in the center of his brain which is attached to the left side. The cyst is small and from what they can see the fibers are not deep into the brain but the cyst will cause issues for Noah with his gross motor skills. There not sure how weak the right side will be but it also depends on the how the cyst grows the more fibers it sends out the less he will be able to use the right side. He also told us Noah has had a grade 1 brain bleed probably from being prem and would have been at birth. The area it has happened in is the learning center and would mean he will have some learning difficulties how much we will have to wait and see. He is too small to have an MRI as he needs to go under a GA so we have to wait till he is big enough like for his eyes. The doctor was very clear that he would like us to come in and see the scans and discuss with them what we can do, there is no treatment but they can help with development and monitoring his learning and development. So that was a shock to the system the cyst is not due to anything and once again bad luck. I think it is double bad luck as it affects the right side and that is his good eye :(