Need to put on weight NOW

August 14th Has been a few weeks since my last entry so much to catch up on. Firstly was my birthday on the 11th so nice to have all 4 kids in the house for my special day. The kids decorated a lovely cake for me and sang happy birthday while I was in the bath. Since last entry my back and hip has been very painful I have had chiro to help and it has helped a bit but still in lots of pain which is stopping me doing a real lot. * Noah hit 3kg this week which is a real special time for us. HE hasn’t had the tube put back in and breast feeding really well. We had an appointment on Friday with Haslam to discuss Noah's weight issues. According to his chart his head is normal size for his age, length is slightly small and weight is massively small. Haslam described Noah as the same as a 3rd world country baby. That pissed me off! He had only put on 200grams in 4 weeks and was extremely poor gain. The doctor stated that Noah does have Peter Anomaly and failure to thrive is part of the disability. He put him on the some special oil to help him put on weight. Were on a one week trail with a follow up next week. So far no increase this week with his weight. He also said he was concerned about Noah size of his head. Although it was normal for his corrected age is wasn’t in proportion so the head scan will be being put forward to make sure the cyst is not growing or causing swelling to the brain. Although he wants to wait as long as possible for the best comparison it will be moved forward. He stated Noah was going to small no matter what as past of PA. His limbs are short for his height and they weight with the oil or fortifiers then we will need growth hormones and steroids. Overall hoping Noah has a good weight gain this week will update after Noah appointment picked up the scans when I was pregnant. We looked on the PA website and average height for a man was just 4ft 7. and studies showed that the average life expectancy age was 24. So now we know Noah is likely to have Peters Plus were feelings pretty down. If Noah doesn’t put on Friday. He has his eyes needing testing this week too.