Appoinments Galore

30th August This week have been at the hospital for 2 whole days. Optomology saw him and were really happy with his eyes. The whiteness over the eye has lessened. Although that doesn’t make his vision any better and the cornea is still affected it wont look so ugly as if the eye was all white. This then decreases the risk of us having to use any cosmetic appliances to cover the white eye. She was happy with this progress and reaction to light. He now has to wear his sun glasses at all time in the sun light. Best news is his glaucoma test came back really low so the pressure is good in his eyes so we don’t have to go back for 2 months! We also saw Prof Haslam Noah's weight has been poor and he lost 20grams this week. So the fat isn’t working as well as first hoped. We discussed what we could do and I asked if we could do natural ways before offering medications. He said ok and he said for the weekend to express 2x 80mls bottles and give them 2x a day and see if that helps with his feeding. So far he lost on Saturday and put on today so not sure it is going to be the key factor. He wants me to call Monday with weight and see what we do next. We also saw the physio from the development team seems Noah's big head is a an issue for all departments. He is behind in his development and still hasn’t smiled yet. She gave us some exercises to stop his joints from seizing up and to extend the ones which are not loose. Were due to see her regularly for his development and try and get the best we can. Need to call Haslam tomorrow with the weight of this weekends and he wont be happy so will see what he says to do next.