Neonates Professor

16th July Yesterday was our first appointment back with Neonates and finding out what the hell is going on. Prof Haslam was in cause out normal doctor was on holidays. He was deeply apologetic that Noah had been put on Rose Ward and said to call him next time anything went wrong because they were not informed and he is coordinating his care. He said that the nursery is still Noah's place to go and don’t let the tell us otherwise. He also couldn’t see any results in Noah's file from the ECG he tried to contact Dr Kelly but he was in surgery so he said he will get to the bottom of that before we next go in. He was very mad at the staff and they way we have been neglected for so long. He also read the report on the cyst and said he needed to see the results himself as he has had much more experience. He said no matter what the outcome doesn’t change because they cannot treat it or remove it so probably re do the test in 3 months and watch Noah's right side motor skills to see if there is any issue. But there is nothing they can do. He was happy with Deppas care for the eyes. He suggested we take the tube out of Noah nose and try breast feeding him 3 hourly and see what Noah can do. So we have stopped the polyjules and gavages. I am so tired from feeding every 3 hours on the dot and Noah is so tired also cause I am forcing him to feed and he is tired from being woken up and tired from working so hard. But so far he is doing well and getting milk in each time. I am very proud of him for trying so hard and proud of me for tolerating 3 hourly feeds when they go for nearly an hour each feed it makes sleep impossible. He was also put on more vitamins and iron for Vit D deficient and anemia. Am going back tomorrow to see Professor Haslam for a review and get the results from the head and heart. Will also have a weigh and get back the forms for disability pension for Noah too. Will be interesting to see what happens we are crossing our fingers the tube stays out and we can progress with just breast milk with no additives. Am feeling very positive.