More Results
July 10th – Thursday
I rang the cardio department yesterday to cancel Noah's appointment which was sent out presuming, I said it was mistake and the referral had been met when we were an in patient so we didn’t need it. They said they would get the specialist to call us to confirm we didn’t need the appointment. He didn’t call and today I rang at lunch time to confirm I wanted to cancel the appointment once again they said they couldn’t and Dr Kelly would call soon. In the afternoon the cardiologist called to tell us the results from the ultrasound (ECHO) seemed ok but because Noah is so small and was crying the film was not 100% clear so some other time they would re-do it. He couldn’t see any abnormalities but it is common it needs redoing it if the child is upset as it makes it hard to photograph the heart. I was open to that idea and tried to say we would keep the appointment and tried to say good bye. He stopped me to tell me that the ECG had not come back normal at all and was not within normal limits. He asked us to come in and discuss and re test the ECG after Noah is 4kg so they can get a better reading. He said the ECG showed signs of weakness which can lead to arrhythmia, seizures, blue episodes etc. We need another ECG and tests done but the cardiologist and I agreed that the head paed would make that decision when it should be done or to leave it till the 7th September. He told us the symptoms to look out for and any suspicions call and ambulance straight away. He was very reluctant to leave it so long but since Noah has other issues and the next lots of tests can be invasive he will speak to the paed. I have decided to not push the heart too much and with hold vaccinations for longer. The cardiologist said we didn’t want to stress Noah's heart just in case so I am now more cautious of what he has to go thru. I expect when we go next week to see the head paed we will get an idea of what there priorities are and start testing.

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