Late update NYE

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31/12/09 Is NYE and I have been avoiding writing. I guess don’t want to accept the things that have happened. Noah had his brain scan again didn’t come back good, He has large areas of his brain which are not developing and dead. They have spread from grey areas of the last scan to large areas. Dr Haslam reacons will affect his motor development. I don’t want accept any of it. So will talk abou tit another time. Noah is now 5.1kg. He has been sick and lost 200grams lately but he will be put it back on just might take some time. He is rolling now and smiling all the time. He uses his hearing to find us and smiles away is very convincing if you don’t notice or he smiles at the noise someone made them moved. Looks like Noah has PPS (Peters Plus Syndrome) but we will see the gene doctor later this year. He is still too small too go under GA according to Haslam. He is due tho to transfer to Dr Conway instead  he is a paed and specializes in sick babies  Praying for a better year next year!!!

Endoscopic Dacryocystorhinostomy

25th October Noah has had his tube out for 1 week now. We did a trial on just breastfeeds and he lost 150Grams so Haslam said he needed bottle top ups. This meant we had hell with his colic. He still didn’t put on weight and today Haslam has said no tube and continue to try. I am mortified he wont just let me breastfeed and do polyjoule top ups. He wants me to push Noah to do something he cannot do. We went into the hospital today with Noah's left eye (the bad eye) being very swollen, red and watery. Deppa got us in straight away to test for glaucoma which luckily levels were still low. It came back Noah's tear duct is blocked. As such it isn’t not the tear duct but the drainage duct in his eye. They have said it isn’t developed properly and will need surgery when he can go under a general anesthetic. The procedure is called a endoscopic dacryocystorhinostomy (DCR) and consists of a tube being put down the side of the eye to drain into the nose and throat. it is not related to Peters but can be from an under developed eye. On the good news his white haze has decreased and his reaction to light is great. She was very happy he has full rotation of the eyes and follows light well. Still waiting for a time Noah is healthy enough for GA to have a good look and now the operation for his drainage. At the moment his left eye is very swollen with fluid and breaking down the skin on the lids from the fluid so we have more drops and Vaseline to put on his eye to keep it as healthy as possible. Noah's weight is currently 4290grams and he is 27 weeks old.

Smiling Boy 25 weeks old

Noah smiles all the time now and giggles when tickle him

My life consists of pumping, feeding and gavaging. Im so tired :?(

My special man 4.29 kg!!

Noah starts Solids

OCTOBER 18th 2009- 25 weeks old

Noah started solids today. 1 teaspoon of farex with boobie milk. He loves it and wanted more. He has enjoyed sucking on his rusk too. So proud of my boy! Lets hope this helps the weight gain and tube can come out soon.

Weight Graph

Noah hit 4kg this week. A big milestone for the little Wombat. Here is a graph I have done. The top 5 lines are the % for normal children ranging from 97% - 3%

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Noahs line are the green and orange ones. Green for his corrected age and Orange for his actual age. As you can see their both off the graph as massively underweight. Hoping for a huge weight gain soon.

oooooo

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For Noahs actual age of 5 and half months his weight is 4kg the average (50%) is 8kg

For Noahs Corrected age of 3 and half months (if he was born at term) he is 4kg and average (50%) is 7kg

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Chart from World Health Organisation Chart for weight for Babies 0-6months

As used by CYH and Government of Aust