31/12/09 Is NYE and I have been avoiding writing. I guess don’t want to accept the things that have happened. Noah had his brain scan again didn’t come back good, He has large areas of his brain which are not developing and dead. They have spread from grey areas of the last scan to large areas. Dr Haslam reacons will affect his motor development. I don’t want accept any of it. So will talk abou tit another time. Noah is now 5.1kg. He has been sick and lost 200grams lately but he will be put it back on just might take some time. He is rolling now and smiling all the time. He uses his hearing to find us and smiles away is very convincing if you don’t notice or he smiles at the noise someone made them moved. Looks like Noah has PPS (Peters Plus Syndrome) but we will see the gene doctor later this year. He is still too small too go under GA according to Haslam. He is due tho to transfer to Dr Conway instead he is a paed and specializes in sick babies Praying for a better year next year!!!
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