Where did the time go!

Noah hit 10kg this month. He learnt to talk to say : hey, up, shoes, he says noises which shows: Rachel, Jake, Keeley. thank you, drink

Noah has become quiet a agro boy yelling and screaming. He is very clever learning how things work. His vision is going well and besides when tired can do most things and has good symatry with his strength. He has started child care and loving other kids. Can push pull and yell like any other 2 year old... SO PROUD

Peters Plus Sydrome. Is a genetic disorder which features partial corneas or damaged so Noah can only see through small parts in his right eye. His left eye has minimal vision and has no tear duct so his eye weeps all the time. He can not handle glare.
The sydrome also can affect the brain where Noah has 20% which is damaged or not there this affects his right side giving him weakness and issues were get to understand luckily their first diagnosis of Cerebral Palsy didnt occure.
His heart is not normally shapped and often can go into arthymia causing blue episodes or seizures. The sydrome also causes growth retartdation and kidney faiulre his left is the poor one.
Genetically his DNA is not not structered properly meaning his development is delayed and brain issues are common like epilepsy, tumors and bleeds. He has had a brain bleed and has scaring affecting his speech.Noahs nose and head is not formed properly meaning he has to be on oxygen and may never come off it.
He is one of 14 kids in the world we know of and none in Aust and genetically we have 1 in 4 chance if we were to have another child and most likely would end up with more miscarriages or prem birth.
Yet he is the happiest child in the world. His sibblings have made him strong and determined and taught him things we never thought you would learn. Cognitively he is ok knowing how things work but due to brain damage also forgets things quickly.
He is stubborn, determined and joyful and knows nothing of his special little life.
Adele from Cando comes 2x a month so do assessments and work on skills for Noah to increase his use of his eyes and his development. Currently he weight 10.4kg and development is a 15months old physcially and mentally. Noah also attend little learners playgroup for blind children. Cando provide us with councelling, services for noah and activities like zoo trips for the other kids. Noah is also supported by disabilites SA, mytime, WCH, clown Drs, Star light foundation, CarersSA, Julie at Wendys Ingle farm....
we have a very supportive family and friend network and have met some wonderful people thru FB groups and 5am coffees at the front of the hospital. We thank everyone and organisations who support us.
my biggest thankyou goes to Aaron, Rach, Jake and Keeley without us you guys Noah would not be where his today xx