Weight is going on!

18 September Sorry I have taken ages to write has been so busy around here. After last entry I called Haslam with the weights and he admitted Noah in that evening. Had a good and bad time, firstly Noah smiled, but not at me he smiled at the hospital lights. I was so over the moon he smiled but at the same time upset it was at the hospital. Made me feel like he wants to be there. But I forgot about that feeling fast as I was so over the moon he could see the light and responded. We were admitted in for 3 days and in that time I put my foot down constantly demanding tests and results every shift. Although I hate being in hospital it was a good and bad time. They worked out Noah's head size was not due to swelling of the brain but actually was in proper proportion to his age which is a good thing that it is not affected by his FTT. I saw the speech pathologist who worked out he had trouble sucking due to his weakness. While there we didn’t have Haslam as our paed and the one we had was useless and very old fashioned. To see if Noah was getting enough milk they would do a pre weigh then post weigh. This is the most inaccurate thing to do and the nurse stuffed up and subtracted it wrong so he was given an extra 100ml on the 50ml for me and ended up throwing up everywhere so then they said he had reflux. Was midnight when they told me to give up feeding cause I was starving him and I burst into tears and went out to call Aaron. But when on the phone it hit me to call ABA and get some proper advice. There were EXCELLENT and I cannot thank the councilor enough not only did she give advice and statistics to throw back in their face she gave me confidence I am doing the right thing. So the next morning I spoke to the paed with my new info. He decided with that he would FINALLY call Haslam (after I requested in 10x, little did I know they were scared of him) Haslam called me directly and asked what was going on and when he heard what they were doing and suggesting he came straight over and discharged us. The NG tube was put back in the dietician came up straight away to work out the formula to add the polyjoules and we were out of there. The best thing that happened though was in emergency I met a training doctor from India who was a paed neurologist who explained too me all about Noah's cyst and how it will affect him. He was worth his hour of chatting to me in gold!

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HOME SWEET HOME

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Noah has had the tube in for 18 days now and has put on 400grams! We are over the moon with his weight gain and have noticed he is developing a lot faster. He is babbling all the time now to any sound or lights or movement and smiling all the time. He is finally fitting into some cute outfits too and his sunnies fit. Today we saw cardiologist who re tested his heart he has grown back into his left ventricle and ECG was normal. We also saw Haslam who was happy with his weight gain and just wants to push physio for his development. He showed me his charts and explained Noah will be very short as a man and hopefully his he will grow into his head. His head circumference is in the 10% ile for his age and his length and weight is in the 50%ile for a newborn so he is really out of proportion. Will keep any eye on it and keep going weekly to get some more good news.